We were back at the doctor today. A lady on one of those electric ride on things was waiting on the elevator beside us. Here is the conversation:
lady - "what in the world does SHE have going on?"
me - just a little smile
Luke - smile smile smile at lady
lady - "SHE? HE? has something going on, my goodness"
me - "it's a HE" (in my head, duh lady he has on navy and white stripe romper with the name LUKE monogrammed on it!!!!!!!!!)
(we both get on elevator)
lady - "so how long has he had that?"
me - "he was born with it"
lady - REALLY?? hmm, my son was born with dry skin."
me - (hold it in, Melissa) exit elevator. some people...
I know people wonder. I would too. I really do understand that people are curious and that yes, Luke does look "skinned up" to say the least. It just amazes me that some people express their curiosity the way they do...especially adults. I am thankful that at least for now Luke has no idea what people ask or say about him. I am just so worried about his feelings once he is old enough. Greg and I already feel like Luke has a sensitive personality and that he wants to make people feel good. He is a "charmer!" :) It makes my heart ache to think of others hurting his feelings and/or stomping on his self esteem. I guess I need to start praying about how I am going to help him through those tough times.
as for an update... Luke has been sick, sick, sick. He had a few big throw ups on Friday, Saturday, and Sunday. Sunday night he spiked a 103.8 fever and woke up today (Monday) with 105.8! This was a little scary. I know fevers can get high, I was just a tad worried that it meant an internal infection. We went to see Dr. J again (we were just there Thursday for extreme fussiness..thought it was his ears) and he now has ear infection #4 in about 2.5 months! He also has some nasty virus. So far Motrin is keeping his fever down but once it wears off the fever gets high again. It was back up in the 105's this afternoon. If this keeps up, we are back to the doctor for some tests on Wednesday. He has either been smiling, crying, or wanting to cuddle all day. I have actually enjoyed just rocking him while we stare at each other. Before I know it, he won't want to be rocked at all. Greg has been snuggling with him this evening while I cooked dinner. I love to watch them too.
Saturday we went to the Garrett family lake house for the night. It was great to get away and spend time with the Garretts, Shelfers, and Chambers. (we miss the Cole's but they were walking for Karsyn and Kaden!) The house was amazing and was the absolute perfect house for company and kids! We cooked some yummy meals and had snacks galore! We also celebrated Greg's birthday complete with a cake and candles! I had big plans for Luke to swim in the baby pool with James Thomas and Avery. Let's just say it was a little cold for the boys but Avery sure did love it! Luke was getting sicker by the minute. He threw up all over the house (so so so sorry), would not sleep, and only wanted to be held. Poor baby. It was still great to be there with friends but next time I hope Luke has fun!
Here are a few pics...

besties

Avery and her daddy

Luke and daddy

breakfast...Greg is getting thrown up on outside:)

Lindsay, James Thomas, Autumn

the cake

Josh and James paddle boating

Greg sporting the Bjorn...the only way Luke was content

this pic was from our weekend in Longview

Luke and his Kippy

Luke and his Auntie Anna

I love you! I'm so sorry that you have to deal with those comments...some people have no tact! And I will pray that God shows you and Greg how to best teach and show Luke just how beautiful and perfect he is. We love Luke SO much!!!
ReplyDeleteMelissa,
ReplyDeleteI understand how frustrating it is when people say these things and how you just don't feel like you should have to explain it over and over again to strangers. My son (also Luke) was born with hemangiomas and one was located between his eyes on his nasal bridge, it got so big by the time he was 2 months old people kept making comments about how could a baby hurt himself like that. Ugh, so frustrating to have strangers think you hurt your child. The support group for vascular birthmarks suggested prinitng up little informational cards about hemangiomas so when intrusive strangers make these comments you can just hand them a card and be on your way. Maybe EB has something similar, it at least avoids the conversation and it will educate those people so maybe they won't be so quick to make these comments to other people. Praying for your family!
I just wanted to say that he is precious and has tbe most amazing smile! Will be praying for you all!
ReplyDeleteMelissa. . . UGGG. . . please know that there are SWEET kids/adults in this world. . . I seriously CANNOT believe some people! Let me just say, that I grew up and our whole school was raised to REJOICE in other's differences! Teaching at my alma mater, nothing has changed. . . I had a girl stand up the other day and tell the class she was autistic and wanted to spend her life educating people about Autism! Imagine LUKE doing that one day! Confident sweet Luke! Telling his classmates about EB and being SO sure of himself! Well. . . all the kids thought that the girl was amazing and were asking her questions and being so sweet. . . I overheard numerous kids tell her thank you for sharing something so personal! I pray that Luke surrounds himself with friends like that. . . friends that will encourage him, friends that love him no matter what, and friends that will listen to him with an open heart! Melissa, you will/have provided him SUCH a support group! Your family, friends, and church ARE his support group! AND he is one of GOD'S children! GOD made each little cell of Luke's PERFECT in His sight! With our Father for us. . . who can be against us! Melissa, I cannot imagine what it is like to have someone say something rude and intrusive about your baby! (and I am sure it takes everything in you not to be SOOO rude back!) I love you and your sweet family and please know how much I am praying for you. . . Give Luke a BIG hug for me!
ReplyDeleteMelissa...I can't even read this without getting SO angry and crying!!! I wish I wish I wish...that I could be there next to you to explain to people (in a loving way, of course) just HOW FREAKING RIDICULOUS THEY ARE!!! ugh. Regardless, your little man gets cuter and cuter with each picture you post - I LOVE him! :)
ReplyDeleteUGGGGGH I hate when people do that. I actually made Ethan a shirt that said "Keep staring, I might just do a trick." I hate it when you tell people "oh so and so that I know has or had that." I usually look at them and tell them no they didn't because if they did your wouldn't be asking questions. Hey do you have Facebook?? If you do I have tons of pics of me and Ethan that you could look at. That wound by Luke's nose, Ethan gets the same thing every spring and usually has it all summer. I used to get the same thing as well. hope Luke gets better soon.
ReplyDeleteHugs and Butterfly Kisses
Katie Kacmarsky
Quicksilver99@comcast.net