




I got a little sad this morning. I was taking Luke in the gym and the guy at the front desk says, "whoa, he must have just eaten!" Confused, I just gave a little laugh. He looked at me like he needed a response, so I asked "oh sorry what did you say?" He said, "your baby must have just had a big meal." Still confused I smiled and walked away. OHHH then it hit me, duh, he was referring to Luke's blistering that is all around his mouth! He must have thought it was sweet potatoes or something! Why would I bring him somewhere with food all over his face?! ugh. I guess it's better comments like this are made now when he is so little and has no idea. It breaks my heart to think of something being said to him that will hurt his self esteem one day.
Luke is still eating like a champ! It's almost like we can't keep him full! This is a HUGE answer to prayer. HUGE! I mentioned a long time ago that there are a few big things that can be fatal with EB...one being NUTRITION. We take things a day at a time and for this day 'nutrition' does not seem to be an issue like it has been! woohoo!! We are praying he stays on his growth curve and continues thriving like he is! Also, he is still sleeping through the night! Gosh, who knew what a good night's sleep and some good eating could do for a baby! I know God is listening and caring for Luke :)
I second what Lindsay said about being so thankful for all of the love and support. An extra big thank you to all of our DEAR friends who sent us the spa certificate! We can't wait to use it and have a relaxing day together getting pampered! That was a wonderful surprise. Greg and I are still getting sweet cards. Checking the mail has become super exciting! Thank you for taking time to pray and write words of encouragement.
This post brought tears to my eyes. I can't even imagine anyone picking on luke esp when he is old enough to understand. He will always know though that his auntie will always have his back to ward off the bratty kids. Our pastor read this scripture verse last sunday and I instantly thought of you and luke.
ReplyDeleteMay God fill you with joy and PEACE as you trust in him, so that you may overflow with HOPE by the power of the Holy Spirit.
Romans 15:13
The sermon was all about hope and how God fills us with hope and when we fully trust in him all our fears will vanish.
Love you and continuously praying for the Jones'
Luke is SO cute! Looks like he is such a happy baby. I hope to see you soon, it's been awhile.
ReplyDeleteOoohhhh M!!! I am so sorry he made that comment - I just cried reading this post - and I know the employee wasn't being malicious or intentionally rude...I sing that song to JM every morning - and you are right - Luke IS precious in His sight....BUT he is also precious to every single one of your friends!!!! we love you guys so much - and are constantly praying, cheering and rooting Luke on - he is SUCH the strong, HAPPY, PRECIOUS little boy! xo
ReplyDelete