decisions, decisions

Quick update...we did not go through with the upperlarynoscopy that was scheduled for this past Thursday. Both Greg and I could not let it happen. Dr. J our pedi and Dr. B our derm both fully supported waiting; however, our Gastro doctor still wanted to do it. That is another story. We are probably going to switch GI doctors soon and try to hold off until Luke is six months to do the scope. We still document every feeding so by six months we will have his "roller coaster" eating documented month after month to see his progression/regression. I felt at peace about cancelling the procedure for now, but Luke has had a few fussy feedings since cancelling (go figure!) and has spit up SO much! (he spit up 7 times during our shopping trip to Target...yuck!) I am still hoping this is due strictly to his reflux and not EB. He is still doing so much better than a month ago! We will be going in for a weight check soon. Our only mini concern right now is the fact that he is eating A LOT more and not 'plumping' as much as I feel like he is should. I know....based on pics he looks mighty 'healthy' but I promise it is all mostly in his cheeks! We're not too worried about it...we know he is growing...his clothes prove that!

Please continure to pray for the healing of his blisters. He is still getting so many on his legs and fingers. His face is staring to heal! Praise God for that!

I have taken some new pics. Will post them soon! Have a good day!