We have had a busy week around here! We went in to see Dr. J. for our big 2 month appointment...with shots! He only gained 4 ounces this week, BUT, (drum roll please) Luke was in the 70% for weight!!!! Dr. J. had to re-check the stats to make sure he was right! We both could not believe it! It was so sweet...right after telling me the news, he says, "good work mom, dad, and God!" We love Dr. J. Obviously we all know that EB babies/children can fall down the growth curve at any point, but we are celebrating for now! Luke was in the 93% for height! He has really been looking long to us lately, so that did not surprise me!
We went to see our derm. Dr. B. on Wednesday. Lindsay and James Thomas had an appointment at Texas Children's too, so Luke and I headed up there early to have lunch and sit with our besties on the 14th floor before we made our way to the 8th for our appointment. Who would think I ever would be having to go to TCH with my baby let alone be there with my dear friend and hers...AT THE SAME TIME!? We serve a BIG BIG God who has plans far greater than I ever imagined.
Dr. B. was so happy to see us again and Luke was really happy to see her too. He smiled at her just about the entire time! Precious. I love his innocence. We learned some new wound care tactics that will help now that he is getting blisters on his face. We also learned about a few EB specialists across the nation that we will probably go visit in the future. I also learned that EB kids typically are smaller than others (weight) due to needing more calories and being weird eaters so Dr. B. was super impressed with him currently being in the 70%! Overall, it was a good visit. I feel so blessed to have wonderful doctors who seem to care so much about Luke.
Dr. J. gave us the okay to try to get Luke sleeping through the night. We tried it for the first time on Wednesday night...sort of. He woke up at midnight and Greg went ahead and fed him because we knew he had not eaten a lot during the day. He woke up again at 4 and I gave him a 25 minute crying allowance. He cried for 20 then went to sleep and didn't wake up until 6:45! 12-6:45 wasn't bad considering he had not had a great eating day prior. Last night (Thursday) we tried it again and he did GREAT! I fed him at 8:30 but he did not go to sleep until about 10. He woke up at 3:30 and I mentally gave him another 20 minute crying allowance...and he was back asleep in 15! He slept until 7:40!! 8:30-7:40 with no food! We'll see how tonight goes...
We will have to go back in for a weight check after doing the 'cry out' for a week to make sure he isn't dropping. Dr. J. also said to feed him in the middle of the night if he has a terrible day of eating.
Stayed tuned for another post (with pictures)...we have birthday parties this weekend, Auntie Anna and Uncle Marshal are coming in town, AND we decorated for Christmas!
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