December 10.

32 days for Luke to prove he is not ready to be scoped. We are on the OR schedule at Texas Children's for Luke to be scoped December 10 at 7:30am. If he continues to eat over 20 ounces with little fussing and little spit up for the next 32 days we can postpone the procedure. Yesterday was not a good eating day as far as the ounces and spit up goes, but hey, that is only one day. Today he is doing better so far! I am so scared for our precious babay to go through this. SCARED! We will have to stay at least one night at TCH for him to be monitored. Have I mentioned before how much I loathe hospitals...especially when it is our tiny baby needing to be there.

A little more news...he has gotten another blister on his chin. I get a sick feeling in my stomach when I see these ugly reminders of his disease on his little sweet face. I am trying to change my prospective on this. Maybe these blisters need to be a reminder of the One who delicately made Luke...that Luke IS extra delicate and EXTRA special...that he is being lifted up by so many for healing possibly bringing more people to God...and mostly a reminder to be thankful he doesn't have a worse condition. He is able to smile and communicate with us and if you are a parent, we all know what one little smile can do! :) I still haven't lost hope for no more blistering on the rest of his face and mostly for complete healing!

My sweet friend Amanda Yocum sent me a wonderful devotional book. I flipped ahead to DECEMBER 10...and oh my:

"Make Me the focal point of your security. Instead of yearning for a problem-free life, rejoice that trouble can highlight your awareness of My presence. Accept the value of problems in this life, considering them pure joy..." "When your private world feels unsteady and you grip My hand for support, you are living in a conscious dependence on Me."