emotion.

*** I wrote the post below a few weeks ago. As an update since this post, I am feeling better. Sometimes, I get a little emotional when I am CONSTANTLY reminded of stupid EB. His stomach is looking so much better now that I switched diapers. It seems to be healing without new blisters popping up at such a rapid pace. YAY! It is really amazing the pace that his little skin regenerates and heals. Seriously. Sorry if this is TMI, but I can put a clean sheet on his bed and when he wakes up in the morning, it be filled with lots of scabs. (along with finding them everywhere...our bed, washing machine, lent filter....everywhere!) Gross, I know, but a wonderful reminder that God does HEAL. Maybe not always perform miracles to CURE, but He does HEAL. Our bodies are amazing.

Other news: Luke came down with an awful stomach virus a couple of weeks ago. NOT FUN. Then I got it, also NOT fun. Greg managed to stay away from it. Whew, so glad it has passed. I guess the month of February hasn't been the best health wise. Luke has had 2 ear infections and a stomach virus. yuck! Hoping March is a better one!

Some really exciting news...Luke can now walk with a walker (push toy)!!! It is so cute to watch. Hopefully he will be an expert solo walker in no time. He feet are taking a small beating, but he is so tough and wants to be on the go SO badly! My sweet mom had some shoes made for him to try. They are adorable and seem to be doing ok. She also purchased the pattern to make them herself.

Also, since this last post, Anna and Marshal (AKA Auntie and Uncle Marsh) came to visit. Unfortunately, I don't think we got any pics, but it was a great weekend. Even thought the house had literally been sterilized prior to their visit, that darn virus got Anna and she was home with the bug by Monday night. SO SORRY!

I will post his 15 month stats soon... or I might just post them with his 18 month stats since we go for that appointment on March 7. If you think about it, please say a prayer for my parents and Luke next week (Sun-Thurs). Greg and I are taking our first real trip sans Luke! We are going skiing with some dear couple friends from church. I am excited for some much needed time and relaxation away with Greg but am REALLY anxious about leaving him. He is a sweet little boy but happens to require extra care than most. I know mom and dad will be great, I just hope Luke is great in return!




POST FROM A FEW WEEKS AGO:

For some reason, I am feeling a lot of different ones. It's a good thing, I think. I have been a little more sensitive about Luke lately. Deep down, I know I shouldn't be. We have entirely too much to be grateful for. He is SO happy and healthy, internally (which is the most important thing). But, lately I can't seem to even change his diaper without tearing up. He little body looks pretty rough. I was hopeful going into Winter that he would have a few months of less blistering. Well, Greg and I are not impressed with the cooler weather. His face did have a longer spurt of being clear, but oh my not his legs, feet, hands, and STOMACH! The only thing I can think is causing the mass blistering around his tummy is his diaper but it seems so weird that he has always worn the same diapers and now all of a sudden it is a blister frenzy! Our precious, sweet cleaning lady/friend (I used to teach her little boy) who we love dearly and she loves Luke so much was here the other day while I was doing some blister routine. She heard Luke crying and crying, and like she always does, ran upstairs to check on him. When she saw what he has to go through, she starting crying so hard, which then made me cry too. It's not fair. I HATE IT and would do ANYTHING to take it away from Luke.

I feel a bit guilty complaining and being negative. I try not to complain too much and for the most part have adapted to EB. But every now and then, I get frustrated and sad about it. I honestly mean it when all in all I am so incredibly thankful. There are some REALLY TERRIBLE illnesses out there and WAY MORE SEVERE EB, to be specific.

On another happier note, Luke is loving his one day a week MDO. He is learning so much and it is so fun to watch. We have FINALLY gotten into a good routine. He takes one GREAT nap a day right after lunch. We have sort of turned the game room into a play room and moved most of his toys. It is carpeted therefore he is able to really crawl around and play without stopping and whining because it hurts on the tile/wood downstairs. We have a couch and TV in it, so it is nice for me too and Luke is so content just playing.

Last weekend, all of our girlfriends had a BIG 30th birthday celebration/girls weekend. Lindsay did a fabulous job planning the festivities. There were 12 of us and we all met at the Elder lake house on Lake Limestone. It was a wonderful weekend of games, eating, Miss America, eating some more, catching up, and some more eating. Greg had a wonderful time with Luke too. He really said he had a great time. They went to the grocery store together (where Luke got a new balloon and Lightening McQueen car) , played at home, went on a walk around the neighborhood in his blue car, and Greg even blow dried Luke's hair. SO CUTE. I am so thankful for Greg. He loves so deeply.

Promise to do a pictures only post next...I do not know how to get pictures on here from our new laptop. I told you I am not good with computers. :)