almost 5 months!

Luke is napping right now...or at least trying to, so I thought I would give a little update.

This past weekend my mom and dad came in to visit. We had Luke's Bible presentation at church Sunday morning. Luke did great! My dad took some pictures and I will post them as soon as he emails them to me. I know events like this are probably super special to all parents, but I can't help to think how special it is for us that Luke is thriving like he is and for him to get to be a part of these special moments. We try not to take advantage of anything we do with our little one. We know there will be many times throughout Luke's life when he won't get to do "normal" things because of his terrible disease so each milestone seems extra special. (again, if I could only pause his life and keep him a baby! no crawling! no walking! no solid foods! only cuddling and bottles!:) just kidding...I want him to experience all of these things as long as he can do them without pain!)

We are off to our pedi. this afternoon. Luke has had this nasty cough for almost 3 weeks. My sister told me that sometimes a cough longer than 2 weeks or so can possibly turn into pneumonia. Sooo we are going as a precaution! It has been a little scary at night when he coughs and it turns into a choking sound.

I also want to get the sole of his foot looked at. There is a BIG blister that will not stop growing! It has been so frustrating! I poke it so many times and it keeps filling back up and getting bigger! It is really red too so I just want to make sure nothing looks infected. His bottom crack is still looking bad. He now has multiple blisters down it. They don't seem to bother him much unless I accidentally wipe instead of 'pat'. We have been keeping them COATED with Aquaphor and Desitin..hopefully they heal SOON! On another note, I have become SO much better at wrapping him! The dressing on his feet actually stay on now! :) Yay!

Luke will be 5 months on the 6th. I can't believe how fast time has gone by. There has been SO much joy brought into our lives by this little boy. He is a fighter that keeps on fighting! He has definitely helped Greg and I become stronger people, closer to one another, closer to God, and has taught us how to love like we never knew possible. Well, I actually attribute that to our Father, but He continues to use Luke as an Earthly teacher! 2009 was filled with so many emotions...here's to a wonderful 2010! (I will take his 5 month pic this week and post it.)