Last Monday we had our first genetics appointment at Texas Children's. We liked our doctor (yay!) and learned a few new things. They took lots of blood from Luke to be sent off to some special lab. Apparently there is only one lab in the US that does this kind of testing so we won't know anything for 6 weeks to 3 months! annoying! Here is what we are HOPING to learn from his blood work: a)what type of EB (it's about time!) b) HOPEFULLY the subtype c)possibly gene mutations and/or was it a random mutation or could Greg and I carry the gene (in which case more testing on us will happen) These are all BIG things to know. Each different type of EB has a different prognosis some of which extremely severe. Based on looks alone, our derm. thought it is junctional but we have also heard simplex. We also learned that even if it was a random gene mutation, there is still a higher chance of us having another baby with EB. Please pray as Greg and I will have big decision to make in the future about having another baby. More on this in a few weeks!
We had a great week with Devin, Diane, and Kelsey here. Unfortunately, I didn't get any pictures because of the missing camera battery, :( Our week consisted of eating a lot, go cart racing, ice skating, and a lot of relaxing and loving on Luke! Thanks for making the trip from Virginia Diane and Devin!
Here are some pics from Christmas in Longview: (as you can see, Luke's face is looking great! It is so weird how it seems to all begin to heal at once and then lots of blistring comes back at once.)
Anna, me, and Luke after the Christmas Eve service. He was not on his best behavior for church!
The pictures below are of the room my mom and dad re did as a nursery in their house! It even had a Fisher Price nativity set up. Also, the bathroom had decor on the walls...it is so cute!
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